Irritable, from constantly being in pain and dealing with the constant symptoms of Ulcerative Colitis. Tired, from having to fight the unrelenting symptoms, side effects of medications, and never ending trips to the toilet. Depressed, because no matter what I did, what medicine I tried, what I ate, I always felt isolated and alone, because of this disease that defined me.
One of my lowest and most shameful points was having to hold my newborn baby on the toilet, because I couldn’t hold my bowels long enough to secure him into his swing or bouncer. After failing the ump-tenth medication in December 2021, my doctor and I decided that it was time for a colectomy. April 6th, 20 days before surgery, was the worst/ most embarrassing most unparalleled lonesome day of my UC life. On this day I didn’t even know I had to go, and let out a deluge of mucus and blood that soaked through my pants, through a slatted chair and onto the floor of where I was eating at in Walt Disney Wor